Another catch up post :) so last post i filled you in on his schooling and how he was doing there, other things to happen in 2013
# Alex lost his first tooth, in fact his now lost 4 in total with a 5th too come out any day now
# A local funding program here in Australia added Microcephaly too there accepted list of things and we where able to get some funding for him.
So id like to tell you more about the funding help we have received, its a certain amount and they get it till there 7, for Alex this means it runs out end of August 2014, so really we have 10months so use as much as we can, his doing speech therapy and OT as well.
The improvement in his speech is amazing even tho at this point his only done around 6 sessions.
His only just started OT this year as by the time his funding was ready last year, the school year was over and with a little brother and sister and home to distract him it didn't make sense to start at home. In saying that i just spoke with his OT today and once again I'm so proud of my little man, he knows his different to the other kids, there no doubt about it but he refused to let it hold him back in fact his OT said his drive/focus is amazing. Sometimes with other work at school in struggles to focus but when his therapist come he puts in 110% during his sessions this is doing amazing things for his progress and of course his confidence.
After getting some bad news a few weeks back that once again he failed the government testing and will not qualify for a government funded add :( i was super glad to hear of his progress in his therapy today. He amazes me every day and I'm very proud of him. Today is a day for happy years from mummy not sad tears.
All the ups and downs, the tears, the tests, diagnosing it and everything in between.
Music
Sunday, 23 February 2014
Another catch up
Wow its been over a year since i posted, id like to say ive been busy and ive been busy enough, after all three kids will keep you busy but ive just bee slack, very sorry :( ill try and do better because Alex's story is important to me.
The biggest thing that happened last year of course was Alex started school, Alex is attending main stream school. I'm beyond proud of how far he came during his first year of school and he had the best teacher and children in his class.
He had some small trouble being bullied when he first started, another special needs child pushed other children around, this wasn't limited to Alex but because of his small size he did pick on Alex a lot this really upset him and shook his confidence. A couple of months in, the child was moved to another class and the change in Alex was almost instant he improved dramatically. We had a few tantrum problems at the start of the year, they lessoned during the course of the year with only the odd one on days he was tired. We found the tantrums came down to mostly him getting frustrated that he couldn't be understood, as you know one of Alex's issues is his speech but as the year progressed the children in his class learnt about him and became fantastic support for him.
At one point they covered him in stickers when he read his book to the class for the first time, when i arrived to pick him up they all shouted at me and shared in the joy of his improvement. This really touched my heart :) Too know he was supported so well i think it made all the difference in his progress.
When we got his mid year report i was worried everything was below where a child his age should be and this concerned me a little, i didnt except certain things to be at level but i was hoping some was, well the good news is when i got his end of year report all but his writing was at where it should be, yes it was the lower end of the graph compared to the other children but he was still in the green area and this mummy couldn't be more proud of her little man,
The biggest thing that happened last year of course was Alex started school, Alex is attending main stream school. I'm beyond proud of how far he came during his first year of school and he had the best teacher and children in his class.
He had some small trouble being bullied when he first started, another special needs child pushed other children around, this wasn't limited to Alex but because of his small size he did pick on Alex a lot this really upset him and shook his confidence. A couple of months in, the child was moved to another class and the change in Alex was almost instant he improved dramatically. We had a few tantrum problems at the start of the year, they lessoned during the course of the year with only the odd one on days he was tired. We found the tantrums came down to mostly him getting frustrated that he couldn't be understood, as you know one of Alex's issues is his speech but as the year progressed the children in his class learnt about him and became fantastic support for him.
At one point they covered him in stickers when he read his book to the class for the first time, when i arrived to pick him up they all shouted at me and shared in the joy of his improvement. This really touched my heart :) Too know he was supported so well i think it made all the difference in his progress.
When we got his mid year report i was worried everything was below where a child his age should be and this concerned me a little, i didnt except certain things to be at level but i was hoping some was, well the good news is when i got his end of year report all but his writing was at where it should be, yes it was the lower end of the graph compared to the other children but he was still in the green area and this mummy couldn't be more proud of her little man,
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